Links

These links do not construe endorsement, especially of commercial sites.  They are for informational purposes only.  If you don't find what you're looking for, visit us at alt.support.alzheimers.

Alzheimer's International

Lists ALL Alzheimer's organisations http://www.alz.co.uk/caregivers/national_alzheimer_s_associati.html

Behavioral Challenges

or jump down to:

Books and Tapes

the Brain

Care Aides

Changing Rolls

Children and AD

Dementias

Drugs

End Stages

General References

Government Resources

Insurance

Legal References

Nursing Homes &
   Assisted Living

Ombudsman

Resident's Rights

Tissue Donation

Translators

Recognizing Pain in the Person with Dementia
How Do I Convince My Father to Seek Help? by Mary Gordon
True Lies or True Love? by Pam Pomo
Strategies for Managing Symptoms http://neuro-oas.mgh.harvard.edu/sea/SEADwebManage.html
Solutions for Living with Alzheimer's http://www.agelessdesign.com/art-solutions2living.htm
American Music Therapy Association http://www.musictherapy.org/
Also see our FAQs, Behavioral Challenges and Argue or Go Along.

Agitation
Haloperidol and Trazodone No Better Than Placebo http://www.pslgroup.com/dg/1cc6f2.htm
Coping Strategies http://www.mayo.edu/geriatrics-rst/Agitn.html
Management of Agitation Behavior http://www.ec-online.net/Knowledge/Articles/agitation.htm

Bathing
Bathing http://www.alz-nic.org/Bathing.htm
Alzheimer's and Bathing http://www.vhihealthe.com/topic/alzbathing
Also see our FAQ, Bathing.

Eating
Tips On Eating http://www.zarcrom.com/users/alzheimers/4-07.html
Eating and Feeding Problems http://alzheimers.about.com/health/alzheimers/library/weekly/aa062000a.htm
Also see our FAQ, Eating: Too Much or Too Little.

Sleeping
Some Suggestions http://www.zarcrom.com/users/alzheimers/c-21.html
Sleeplessness http://alzheimers.about.com/health/alzheimers/library/weekly/aa072500a.htm
Also see our FAQ, Sleep.

Sundowning & Wandering
Sundowning
http://alzheimers.about.com/health/alzheimers/cs/sundowning/
Related to Sleep Disturbances? http://www.cyfc.umn.edu/Documents/H/B/HB1060.html
Also see Electronic Response Systems links 
and FAQ, Sundowning & Wandering.

Books and Tapes

When Meme Came to Live at My House  by Mary Janine Langdon http://www.memeandme.com/page%20samples.htm
    Read a Review by Pam Pomo
The Other Side by Tim Brennen (online articles by an EOAD victim) http://alzwell.com/stpt1.html

The 36-Hour Day http://www.press.jhu.edu/press/books/titles/s99/s99ma36.htm
The Alzheimer's Bookstore http://www.alzheimersbooks.com
The Complete Guide to Alzheimer's-Proofing Your Home http://www.agelessdesign.com/bk-complguide2alzproof.htm

the Brain

The Whole Brain Atlas http://www.med.harvard.edu/AANLIB/home.html
Nervous System http://www.britannica.com/eb/article?eu=119942&tocid=0
Image of Healthy Brain http://www-medlib.med.utah.edu/WebPath/HISTHTML/NEURANAT/CNS013A.html
Image of Alzheimer's Brain http://www-medlib.med.utah.edu/WebPath/CNSHTML/CNS178.html

Care Aides

Assistive Devices
http://www.adlmedicalsupply.com/medecat/rs/ecatalog/default.asp
http://www.jtposey.com

Clothing
http://www.caringconcepts.com
http://www.speciallyforyou.net
http://www.nursinghomeapparel.com
http://www.silverts.com

Electronic Response Systems
http://www.caretrak.com/home.htm
http://www.advance-tech.net/childwat.htm
http://www.dynamic-living.com/motionalert.htm
http://users.javanet.com/~llb/
http://www.seniortechnologies.com/
http://www.alert-1.com/

Incontinence
Been There, Tried it, Didn't Work!  by Beverly Bigtree Murphy (great site!) http://www.bigtreemurphy.com/been_there.htm
Causes and Solutions http://alzheimers.about.com/health/alzheimers/library/weekly/aa061300a.htm
Online Support
http://www.incontinencesupport.org/
Products (most online places send samples to pick the best for your LO)
http://www.dmponline.com
http://www.hdis.com
http://www.adultdiapers.org/addisdiap.html

Also see FAQs, Caring for the Caregiver,
Caring From a Distance and Incontinence

Changing Rolls

Reality Sets In by Mary Gordon
Intimacy in Alzheimer's Disease http://www.bcm.tmc.edu/neurol/struct/adrc/adrc6.html#Intimacy

Children and AD Understanding Alzheimer's Disease by "Jayess"

Helping Children Cope With Dementia http://www.zarcrom.com/users/alzheimers/odem/d8.html
Edgar's Index http://www.nursing.ubc.ca/web_courses/liz/index.htm
Teen Resource Center http://www.ec-online.net/Knowledge/SolutionSets/teens.htm
Information about Dementia for Young People http://www.alzvic.asn.au/ypad01.htm
Talking About Death http://www.ec-online.net/Knowledge/Articles/deathchildren.html

Dementias

To name a few:
depression, diet, drugs, stroke, infection, trauma, Lewy Body, Parkinson's, Pick's, Binswanger's...

Also see our FAQ, Alzheimer's or Something Else.
Writings By the Victims of Early Onset http://alzwell.com/EarlyOnset.html

Causes
Directory
http://www.zarcrom.com/users/alzheimers/odem/od-d.html
A-Z NINDS http://www.ninds.nih.gov/health_and_medical/disorder_index.htm
EOAD  (U.K. resource) http://www.alzheimers.org.uk/ypwd/services_database.html 
Lewy Body http://www.emedicine.com/neuro/topic91.htm
Multi-Infarct Dementia http://www.allhealth.com/ahtools/encyclopedia/article/0,8895,000746,00.html
Nutrient-Drug Interactions http://www.merck.com/pubs/mmanual/section1/chapter1/1d.htm
Parkinson's http://www.parkinson.org
Pick's http://www.bhoffcomp.com/coping/picks.html
Wernicke-Korsakoff Syndrome http://alzheimers.about.com/health/alzheimers/library/blalcoholrelateddementia.htm

Diagnoses
Evaluation and Diagnosis http://www.mayo.edu/geriatrics-rst/Dementia.I_ToC.html
Possible AD Blood Test http://my.webmd.com/content/article/1728.57580

Online Support
alt.support.alzheimers
BrainTalk Communities
http://neuro-mancer.mgh.harvard.edu/cgi-bin/Ultimate.cgi
Early Onset Dementia Victims mail list http://www.alzmndak.org/caregivers/network.htm

Research
http://www.nlm.nih.gov/medlineplus/alzheimersdisease.html
http://www.alzforum.org/members/index.html

Drugs and Research

To learn more about about specific drugs, enter the name into any search engine. You'll probably find lots of information. Come to a.s.a and ask how others have reacted to various meds.  Remember though: Everybody's different.

Anesthesia and the Patient with Alzheimer's http://www.alz-nca.org/caretips/anesthesia.asp
Ageless Design's News http://www.agelessdesign.com/news-alz.htm
Melatonin
http://www.alzforum.org/members/research/drugs/melatonin.html
What is Reminyl  [galantamine] http://www.us.janssen.com/products/pi_files/reminyl.pdf

Clinical Trials
http://www.alzforum.org/members/research/drugs/index.html
http://www.centerwatch.com
http://clinicalstudies.info.nih.gov
http://www.clinicaltrials.gov/ct/gui/c/b

Free Medications Programs
Search by zip http://www.medicare.gov/Prescription/Home.asp
http://www.themedicineprogram.com 
http://www.needymeds.com
Prescription Assistance Programs and Contact Numbers (U.S. only as yet)

References
http://www.dispace.com/ditonline
http://consumer.pdr.net/drug_info/index.html
http://www.pharma-lexicon.com
The "Medications" Index http://www.zarcrom.net/users/alzheimers/me-index.html

End Stages

Crossing the Creek by Michael Holmes, RN http://crossingthecreek.com/guts.htm
Death-What You Can Expect http://www.zarcrom.com/users/alzheimers/e-06.html
Last Acts http://www.lastacts.org
Living Wills and Artificial Means of Saving Lives by an unknown visitor to a.s.a
Also see our FAQ, End Stages.

Tube Feeding
Facing the Realities of Late-Stage Care
http://www.alzheimers-illinois.org/articles/realities.html
Handbook For Mortals http://www.growthhouse.org/educate/flash/mortals/mor11101.html
Tube feedings do not benefit... http://www.healthcentral.com/news/newsfulltext.cfm?id=19100&StoryType=ReutersNews

Hospice
International Association for Hospice & Palliative Care http://www.hospicecare.com/Orgs/Orgs.htm

General References The "What Is Alzheimer's" Index http://www.zarcrom.net/users/alzheimers/w-index.html
Encyclopedia Britannica: Human Nervous System http://www.britannica.com/eb/article?eu=119942&tocid=0
Administration on Aging http://www.aoa.gov
International Aging Resources http://www.aoa.dhhs.gov/international/oiar.html
Caregiver's Handbook http://www.biostat.wustl.edu/ALZHEIMER/care.html
Alzheimer's Research Forum http://www.alzforum.org
Alzheimer's Outreach http://www.zarcrom.com/users/alzheimers/index1.html
Ageless Design http://www.agelessdesign.com
Healingwell http://www.healingwell.com/alzheimers
ElderCare Online http://www.ec-online.net
Family Caregiver Alliance http://www.caregiver.org/factsheet.html
Mayo Clinic http://www.mayohealth.org/
ADEAR http://www.alzheimers.org/
Government
   Resources
Australia Office of Ageing http://www.families.qld.gov.au/ageing/news.html
Canada Policies and Programs http://www.sppd.gc.ca/default_e.html
U.K. Department of Health http://www.doh.gov.uk/scg/bran5.htm
U.N. Programme on Ageing http://www.un.org/esa/socdev/ageing/index.html
U.S. Administration on Aging http://www.aoa.gov/
        NCOA Benefits Check Up http://www.benefitscheckup.org
Insurance

Long Term Care Insurance
Consumer Information http://www.longtermcareliving.com/

Medicaid/ Medicare/HCFA
http://www.hcfa.gov/
Murphy's Unofficial Medicaid Page: A Guide http://www.geocities.com/CapitolHill/5974/

Legal References

Legal Planning for Incapacity http://www.caregiver.org/factsheets/legal_planning.html
Durable Powers of Attorney and Revocable Living Trusts http://www.caregiver.org/factsheets/attorney_powers.html
State Cases and Codes http://www.findlaw.com/casecode/state.html
Elder Law Attorneys http://www.naela.org/
Finding an Attorney http://www.caregiver.org/factsheets/finding_attorney.html
Also see our FAQ, Legal Issues.

Nursing Homes &
     Assisted Living
In many places, assisted living facilities are not as carefully monitored as nursing homes but there ought  to be some sort of monitoring program.  Facility survey reports should be available from your ombudsman.


Finding a Good Nursing Home http://www.agelessdesign.com/nl0301-ftc-nh.htm
Questions you should ask
Predictor http://cpmcnet.columbia.edu/dept/sergievsky/predictor.html
Also see our FAQ, Nursing Homes & Assisted Living.

Laws, Licensing & Surveys
Canada Ministry of Health http://www.healthplanning.gov.bc.ca/ccf/adult/index.html
             Ontario Resitential Care Association http://www.orca-homes.com/

     U.S. Nursing Facility Services http://www.hcfa.gov/medicaid/ltc1.htm
             Federal and State Laws http://www.nursinghomeabuse.com/brgi2.html
             State Assisted Living Policies http://www.carescout.com/resources/assisted_living/state_policies/index.html
             Nursing Home Compare http://www.medicare.gov/NHCompare/home.asp

Online Directories
Canada http://www.ambienceguide.com/searchbc.asp
             http://www.ccacpeel.org/
             http://www.thecareguide.com/

     U.S. http://www.nursinghomeinfo.com
             http://www.careguide.com

Ombudsman

http://www.aoa.gov/aoa/pages/ltcomb.html

Resident's Rights

http://www.nursinghomeaction.com/public/50_156_449.cfm

Tissue Donation

U.S. Brain Banks http://www.alzforum.org/dis/dia/bra/default.asp
Alzheimer's Disease Research Center http://www.bcm.tmc.edu/neurol/struct/adrc/adrc5f2.html
University of Texas Southwestern http://www2.swmed.edu/alzheimer/alznews/vol6no1/organ.htm
Harvard Brain Tissue Resource Center http://www.brainbank.mclean.org/BrainDB/Welcome.htm

Translators

http://babelfish.altavista.digital.com
http://www.translate.ru/eng
http://www.systransoft.com

 

 

 

Revised: 12 Feb 2003 or thereabout.